We love the Christmas holidays. We love giving and getting gifts, shopping for gifts, pictures with Santa, putting up the tree, decorating the house, and of course the baking and the eating. And, of course when I say we, I mean me and The Mommy. PT, not so much. PT likes looking at the tree, and being in charge of turning on and turning off the lights, but he doesn’t care for the time it takes to get the tree up, the restrictions on what...
Parenting Challenges
One would think that a prominent Children’s Hosptial, who has specialists in area’s like developmental disabilities and an Autism center, that the staff throughout the facility would have a passing familiarity with Autism. Especially a division that promotes itself as a place work on issues of picky eating, texture issues, and like, would be use to seeing children with Autism. Yeah, well apparently not so much. So the back story. A...
So here we are. Review time. I wrote about this a few days ago. It is time for our bi-annual review of PT’s care and situation. And, as I posted then, things are going well. He has made great progress in social skills. But we still have issues with things like the potty, his understanding of free will (my way of saying that not everyone wants to do what he wants to do), and of course the chewing and tantrums. Oh yes at age 7 we still have...
Those of you out there on the inter-webs may have noticed that we haven’t posted anything in a while. We, quite frankly we haven’t had much to say that would be interesting. Things have been going, dare I say it, well. We haven’t had any major problems in school. kindergarten graduation has pretty much gone off without a hitch. PT has been more socially out going at school, thanks in no small part to his wonderful TSS MJ. Until...
Well, I know you heard it already. I know I mentioned it in our last post that we and the psychologist administering the test, thought PT had an Autism Spectrum Disorder, and that was just based on causal conversation and his impressions while giving the test and conducting the interviews. Though, he did think it would be at the higher functioning or Asperger’s end of the scale. As far as the testing went, they did two...
A few weeks ago, we posted that on a Saturday we received our denial letter. They denied part of PT’s prescription from Dr. P. In the mean time we have been reviewing documents, reading things, writing, and writing some more. We wrote a 5 page response that included a reference section and footnotes. We outlined the incorrect information in the letter (yes there was stuff in the letter not mentioned in the meeting OR listed in any or the...